Spoke Too Soon...

Well, er, um... we, the Telford Family Unit, are no longer whole, at home. In fact, we barely were home at all. Hank returned once AGAIN today to Arnot Hospital less than 24 hours after discharge the first time (Tues/Wed) with further refluxing issues. He even showed his pediatrician how he does it, in her office this morning! We were sent over to the hospital for x-rays and admittance. Hank was put on electrolytes because we stopped feeding him via his GJ tube. The x-ray showed that, sure enough, Henry's feeding tube had once again become dislodged. Only this time, it was not noticeable on the outside, which means the tube has coiled upon itself inside Henry's stomach. It seems his physiology has caused this somehow, and that is why CHOP has come into play again. It is up to them to fix this problem, for good ("So she states adamantly!") This is out of Arnot's hands at this point.

So for now, it's 10:30 pm and Henry is currently at CHOP; he was airlifted by helicopter around 6pm tonight. Ron tried to go with him but there were weight restrictions. Hank's settled in to the CCU a mere 3 and a half days after discharge. I would give anything to see the look on those CCU nurses faces when they get a load of Hank rolling in to their unit again so soon. Ron is taking my place this go-round and heading down sometime tomorrow morning. We'll call RMH in the morning and try to get him in; it is to our advantage that he is solo. Easier to give a room for one person vs. a family. Maybe he'll get Room 20, the room at the front of the house on the third floor that used to house a great big organ. Its about the size of a generous walk-in closet. Cozy!

For the heckuvit, i'll toss out my prediction: Henry will get a nissen, after all. I talked about this in a previous post when it was being decided on whether to give him a nissen or a GJ tube. We all know the latter was chosen. A nissen will prohibit anything from coming back up. His reflux issues really affect him - they create breathing difficulty, increased breathing, breathing pauses and bradycardias (the infamous "brady"). It's all bad news for Hank, so if they can get this reflux issue under control, it will be a non-concern. Because Henry's been throwing up since our drive back from Philly, I'm always waiting for the next throw-up. Just waiting. It's an awful feeling, anticipating something i cannot control or stop.

More to come as it develops....