A Better, More Comprehensive Explanation of "4q Deletion"

The following explanation is directly from a section of the Genetics page on CHOP's website. I've tweaked the specific chromosome, but the explanation is the same. I think it better explains what is going specifically with Henry's chromosome defect:

The chromosome 4q deletion is a chromosomal difference, which may or may not run in the family. Nothing parents do — or don't do — causes it. In fact, most children who are born with a chromosome 4q deletion didn't have a parent with the disorder, meaning it's a "new mutation."

To understand how the chromosome 4q deletion occurs, you should first have a basic understanding of what chromosomes are. Chromosomes, which are in every cell in our bodies, are made up of smaller structures — called genes — which are in turn made up of deoxyribonucleic acid (DNA). Most people have 23 pairs of chromosomes (46 total), with one of each pair coming from their mother and the other from their father. Chromosomes are numbered 1 through 22; the 23rd pair are called sex chromosomes (X and Y) because they determine a person's gender — male (XY) or female (XX). Chromosomes are also divided into two parts called "arms." The top half is the short or "p" arm and the bottom half is called the long or "q" arm.

When a baby is conceived with either too much or too little genetic material, birth problems (defects) can occur. This may include a whole extra chromosome — as in Down syndrome (an extra 21), a whole missing chromosome — as in Turner syndrome (a missing X), a piece of extra or missing material, or a complex rearrangement of genetic material. Since genes are the body's blueprint, when there are lost or extra, the blueprint changes, frequently leading to birth problems and learning differences.

Children with a 4q deletion have a very small piece of chromosome 4 missing; that's why it's called a "deletion." The q31.3 tells everyone who works in genetics that the missing piece is in a very specific spot on the "q" arm — also called the "long" arm — of the chromosome.

If someone has the deletion, he has a 50 percent chance of passing it on to his children. The chance of having more than one affected child when a parent has the deletion is random, like the chance of getting "heads" twice in a row when you flip a coin twice.

Tuesday, February 9

Between here and Facebook, i realize there might be a touch of redundancy in our status of recent events, but i don't think it will do any harm...

Today is Tuesday and last night, Ron, the boys, Shirley and Ron's sister Ellie (our grateful taxi driver!) returned to Corning. Ron and I decided to leave me with the van for various obvious reasons as well as the optimism that i will return home with Henry soon! We decided to get back into the routine of things at home. I am on maternity leave, so it made sense for me to stay here and visit with Henry as much as possible, get some much needed rest, as well as meeting with doctors as that arises.

I met with Dr. Ravishankar, Henry's cardiologist this morning and she just updated me on Henry's status. The pulminary artery to his lungs is naturally narrowing with his growth, which is a GOOD thing, which means that the blood and fluid flow to his lungs is limited, which is what we want given the nature of his heart defect. If that narrowing does not continue or seems to NOT be constricting at a rate the doctors want to see, the open-chest band surgery will be necessary, which is a procedure done to keep Henry's heart at a comfortable place until The Big Surgery which is planned for a few months (?) from now. Dr. R would like to monitor Henry thru the week with occasional further echocardiograms and chest xrays.

I really like her. She has a direct nature of talking to me with a friendly tone. Good eye contact. I think i might impress her with my understanding and the questions i ask. She always smiles and pats me on the arm. Its amazing how little subtle nuances like this make a WORLD of difference in a situation such as Henry's.

So that is that. Sorry no new pics. I do have FUN pics on the camera that i will upload soon. Pics of the RMH and the kids running amok. OH YEAH - - also - - a local news station doing a segment called FYI Philly came to take video of the RMH and I believe Sam is a HIGHLIGHT of the footage. The videographer and newcast lady were getting a total kick out of him. The airdate is this coming weekend, Saturday at 7pm (again Sunday, i think, at 11:30pm) and with any luck will have a link to the footage. My crazy kid!

Til next time....

Henry Darwin Telford

Born January 28, 2010
4:05pm, 6 lbs. 10.4 oz.
20 inches long

Welcome to Our World,
Baby Boy!

It all started on January 27th, actually, around 7:30 am. I was given the vague impression that my water broke (it wasn't the gushing splash like in movies!) and kept an eye on that all day, with very little other activity. By 10pm, i was calling my doula Bronwyn (awesome gal with an awesome name!) for advice. I felt cramping, but no contractions. I had a doctor's appt. the following morning and despite actually WANTING to go into a more active labor, it never happened. I was put on the ultrasound and it was discovered, by no one's surprise really, that my fluid was at 1cm and it was time to deliver. There was no more waiting for my body to cooperate given that it already had 24 hrs with little progression. So there it was: Prepping for my third c-section. Exactly what i had worked so hard to NOT have. However, given the circumstances, i had my 7 minute hard cry of defeat and went forward. Proceeded to lay in a hospital bed for 6+ hours waiting for my turn. At 3:45 pm, I was rolled outta my room and into the very cold operating room and told to bend forward in the shape of a letter "C" to get my spinal. The anesthesiologist was WONDERFUL. So kind and calm, a warm bedside manner (unlike the dude i got for my first 'emergency' c-s with Sam - he barked at me the whole time. Grumble). By 4:00, Dr. Surosky and his midwife Helen had their hands inside my belly and by 4:05, Henry Darwin was pulled out and shown to me to officially name the sex.

It was at this precise moment that i was shocked by two things. First - the penis. Ron and i never found out the sex (of any of our boys, btw), and so somehow i had decided that the baby inside of me was a girl. I never had dreams, premonitions, what have you. Because i had been going in for low-fluid monitoring twice a week for the last 5 weeks, I had decided that it had to be a girl because Sam and Thom never gave me any 'grief.'



So there was a penis and i believe my first words before "It's a boy" were "Are you KIDDING ME?" All said lovingly, of course. Ron and i were always fine with it being either a boy or a girl, but the more Ron and Sam 'ganged up' on Mommy with fart jokes and secret Men-Only high fives over whispered secrets, i had decided a girl on my side would be pretty good. Oh well.

The second shock was Henry's face. He was born with a bilateral cleft lip and palate (or "double" cleft lip/palate). We had no idea of this beforehand and the reason we could not see it on the MULTIPLE ultrasounds i was having was specifically due to my low fluid - i never did get a clear ultrasound of Henry in utero. The one blurry image we did get looks like Henry's hand near his cheek; in retrospect, i believe that is the cleft l/p we are looking at. Immediately following his birth, Ron and i were assured by everyone, and i mean EVERYONE, that Henry's face is purely a routine cosmetic surgery, that cleft l/p are the number 1 birth defect in babies (1 in 700) and blah blah blah IT CAN BE FIXED, so no worries. I have found a very encouraging before and after surgical picture online as a reference. The before picture, as you'll notice, looks just like Henry. I find images like this helpful and optimistic in picturing my little boy down the road...

I was probably the most aware of my c-section this third time around than any other. I find it interesting all the different phases my body went through during and after surgery. I was so hoping to write about my first 'natural birth' experience, but again - bygones. First there's the spinal, and an overwhelming numbness that overtakes my entire lower half. But what's weirdest about that is when I'm laying there, immediately post-surgery, and i reach down with my arms, which are not numb, and touch my belly and legs... it feels like a cadaver. It's the oddest sensation to reach down and touch your own body to have it feel entirely disconnected from yourself. Following that is intense itching, mostly on the face, due to the Morphine. The scratching never really ceased for 24 hours, so i was left with a face that appeared and felt chapped and sunburnt and which actually peeled a day after that. I also experienced chills, sweats, nausea and of course general discomfort to my mid-region. While Dr. Surosky was stitching me up, he mentioned that my uterine scar was paper-thin, and so trying to deliver naturally would have ended in an emergency for both mother and baby. He also "tied my tubes," so that is the end of my baby-makin' days. I'm okay with this. Three's a charm.


Some routine tests were performed on Henry. Whenever they see a cleft lip/palate, they immediately look to the heart. I like to call it a "Flow Chart" decision. If X happens, Y then is investigated. A heart murmur was detected and further testing was ordered. By the next morning at 8am, a pediatrician entered my room looking very somber. Ron was home with the boys. The doctor informed me that a very serious heart defect had been detected in Henry and even further testing was needed, but beyond that, the condition of this defect required IMMEDIATE emergent attention, which all meant going somewhere other than Arnot for care.

I felt numb to this information. You know how in movies or books, situations like these are sometimes rendered in slow-motion? Well now i know why. While i was listening to the doctor explain their findings, i was processing everything at a fraction of a second slower. I remember spacing at one point and thinking i needed to have Ron there with me. On top of this, I just had a stern talking with myself about my feelings over Henry's cleft lip/palate. I admit, as Henry's mother, that i was not comfortable with the way he looked and was finding it difficult to embrace him. I was unable to breastfeed him and had very little physical interaction with him up to this point. I didn't know how to feel. A bunch of thoughts flew through my head: First, no VBAC. Fine. Second, the cleft lip/palate. Okay - totally cosmetic and fixable. And now a serious heart condition. I remember thinking "What's next? How many other things are they going to find now?"

A very wonderful, calming pediatric cardiologist in the area, Dr. Thomas Finnerty, came to speak to us at bedside at Arnot. He explained in very understandable terms what was going on with Henry's heart and drew a diagram. His condition is called Double Outlet Right Ventricle. Copied directly from Google Health: DORV is a congenital heart disease in which the aorta rises from the right ventricle (the chamber of the heart that pumps blood to the lungs), instead of from the left ventricle (the normal pumpng chamber to the body). Both the pulmonary artery (which carries oxygen-poor blood to the lungs) and aorta (which carries oxygen-rich blood from the heart to the body) come from the same pumping chamber. No arteries arise from the left ventricle (the normal pumping chamber to the body). As a result, Henry's heart has compensated for this flaw in creating a 'hole' (or a ventricular septal defect (VSD)) - again from Google Health: The presence of a VSD helps the infant with DORV, because oxygen-rich blood from the lungs flows from the left side of the heart, through the VSD opening and into the right chamber, mixing with the oxygen-poor blood. However, the body may still not get enough oxygen even with this mixture, and the heart has to work harder to try to bring more oxygen-rich blood to the body. Again, as a result, Henry is very lethargic and his heart rate tends to be higher than other babies. Also, his lungs are working harder, so his breathing is elevated. The simple act of feeding is very taxing for Henry. This is why he's been on a continuous feed through a tube into his stomach. It's just today that they are starting "Bolis" feeds, which means they feed him a certain amount at a certain time instead of continuously. They've also been using a special nipple/bottle, which he takes to quite well given the condition of his lip/palate, but because it is so energy-draining for him, they limit these feedings to 15 or so minutes. Poor lil bugger.

I've jumped ahead, but to back-track - Dr. Finnerty's diagnosis, paired with the NICU (neonatal intensive care unit) doctor's further findings, all led to the decision to send Henry to CHOP, or Children's Hospital of Philadelphia. It is the best in the country and is especially noted for their NICU and CICU (cardiac intensive care unit), which is where Henry was sent. To recap: within 8 hours of birth, Henry was transferred from the regular nursery at Arnot to their NICU, and within 26 hours of birth, was being medivac'd by airplane from Elmira to Philadelphia. These occurances are the definition of 'driving on auto-pilot.' We were surrounded by professional health care providers who diagnosed Henry's condition, suggested the best hospital to send him to, and we nodded, in trust. No one ever expects to be presented with such dire decisions to be made, and one certainly never PREPARES for them, and here we were, in that boat. I grew especially fond of Dr. Finnerty in the minutes he spent with us, dealing us the news he never likes to give... You know how you just KNOW about someone? He is that sort of person to me. I just KNOW that he's a man to trust.


So now we are in Philly. Henry is a week old. Only a week. This past week has been a whirlwind, to say the least. I've not had the recovery time in the hospital that i said i would milk (no pun intended) *IF* i ended up with a third c-s, which i was confident i would not. I chose to spend the night in the hospital the evening that Henry was sent to Philly. The following morning, i was discharged, sent with a couple Rx's, and went home to pack for Philly, unsure of how long we would be here. We still don't really know, but i'm guessing it will be another week, possibly two, but not MONTHS. The social worker for Arnot was emmensely helpful in guiding us to where to go in Philly. She strongly recommended the Ronald McDonald House and gave us phone numbers and contact names. This is where we are staying and the accommodations are amazing! This place is a little gem tucked into a busy street block in downtown Philly. I had always only heard about RMH, but now that I am partaking of their services, i will contribute to their purpose for the rest of our lives. For only $15 a night, we are able to stay here indefinitely, in a room with 2 double beds, access to a fully stocked kitchen area, large dining room, dinner provided every night, bfast on weekends, computer access, endless game rooms and kid-friendly areas, a shuttle to/from the hospital 6 times a day... Honestly, i've said to Ron a few times... i cannot imagine being in a better place given our specific situation. Sam's made all sorts of friends and hates leaving the play areas. Sam has not been able to see Henry yet, but we're hoping to change that within the next few days. He's getting over a cold/cough/runny nose thing that is not at all conducive to the CICU... but soon, he'll meet his little brother. He's already very fond of talking about him and picked out a smaller version of "Eric the Elephant" to put in Henry's bed.

Let me also take this moment to tuck in here the extreme generosity and care coming from our Wegmans family. Ron and i are humbled beyond belief - special care was given to us concerning Ron's missing work, as well as a generous and helpful gift card. Everyone there embraces us and it is precisely in times like this that i am reminded of how nice we have it there. No one in management even blinks an eye with our having to be out indefinitely or the unknowing nature of our situation. All we have received are warm hugs (physically and metaphorically) and many extending hands of help. Three of my friends have even planned a road trip FOR THE DAY (5 hrs one way) this coming Wednesday to be with me and meet Henry. I think they are trying to get me to cry as much as they can! You've succeeded ladies... now that's enough. :-)

We've had various meetings with various specialists, all with varying news. At the beginning, there was suspect calcifications on the brain that caused us to be concerned. The neurologist met with me one evening at the hospital and informed me that the MRI done concluded no abnormalities of the brain. I was ELATED. I knew issues with the brain could not be good news. Ron and i were SO HAPPY.

But the next day, we had a meeting with Genetics. I knew this meeting might be life-altering. I had a feeling in my gut that Genetics might find something because the nugget had been placed in my mind by the doctor at Arnot that when you have several large defects, you can then look to genetics to play a factor. The cleft l/p, the heart...

Sure enough, the meeting with Genetics did, indeed, turn out to be life-altering. Those 45 minutes were the biggest news thus far. All of a sudden, i could cross the cosmetic repair of the cleft lip/palate off my list of concerns. So thoroughly superficial with this new discovery...



Genetics found that Henry has a rare genetics syndrome called "Chromosome 4 q deletion." In relatively layman's terms, that means that there is a deletion of the long arm of chromosome 4. It's simply missing and this happens at the time of very early embryonic development; it is nothing we could have prevented. I believe the biggest factor in this happening is my age, as often occurs in other genetic abnormalities. Some known effects of this disorder are of course the cleft lip/palate, cardiac issues, a disfigured 5th digit (in Henry's case, it is his right pinky), autism, slow motor and language development, deafness, dental issues, stunted physical growth and a few others. In no way are ALL these factors, but each child varies greatly, as well as with their level of severity. We won't know any of this for some time...

So where are we now? Well... Henry is going to need heart surgery, without any doubt. It's a matter of WHEN and that is being monitored. The longer he can wait, the better. The immediate plan, which i imagine could change, is to send Henry home with us for a period of time until he needs the surgery, and then we'll return. Right now there is talk on whether or not he will need open-chest surgery to insert a band around his pulmonary artery or not, limiting the flow of blood to his lungs so that his lungs do not get compromised before surgery. This has not been decided yet. Its also not decided on whether or not we would go home with a feeding tube in Henry. I'm going to guess YES on that, given the taxing nature of feeding. Which means we will need to go to a class to learn how to do that. He can always have the feeding tube turned off for manual feedings now and then.

Our lives are 'day to day' as they say. I'm fully aware of having good days and bad. I'm also fully embracing the acceptance of Ron and I being "allowed" to feel whatever it is we feel when we feel it. We've certainly had our moments and there are plenty more to come. I keep forgetting that i am a bit post-partum, so one day I'll be doing great and feeling very positive and open to learning, and the next, like today, i feel very blue and down and empty. I tend to get 'whiny' in wanting what i can't have. Things like a baby nursing on my chest. Having a day to sleep and recouperate and not walk around anywhere. A day where I am not sitting in front of specialists being given news that will alter my life. BUT AT THE SAME TIME, i am learning to already embrace Henry for his uniqueness. When i see him now, i want to hold him and kiss his soft little head and stroke his cheeks and pick out the crusties from his little open mouth. Ron and i looked at each other today and mentioned how perfect his name is for him.

Henry. Darwin. It's simply perfect.

We love you, Sweetheart. You will be the gem of our life, along with Samson and Thomas. Welcome to the craziness and abundant love that is "Family Telford."

Our World

When and as time permits, I plan to create a blog entry about the change in our family and in our world recently with the birth of our newest joy, Henry Darwin Telford, born on his actual due date, January 28, 2010 at 4:05pm. Please check back now and then, and hopefully, soon, I'll have some thoughts gathered as well as some much anticipated photos and video of our Love Bug...

HAPPY NEW YEAR... and such updates...

So yeah - i apologize - I've been LAX in updating my "regularly updated" blog lately. I can't even really use the excuse of being pregnant (as of today, due in 4 days) or too overly busy. I can, however, mostly use the excuse of being TIRED and lazy. I'll work all day, come home, do The Kid Thing, and by the time i put them down, i love nothing more than to "just lay down for a minute" in our bed, inevitably conking out for several hours, or at least waking drained of whatever energy i did have left. So yeah - maybe SOME of that is pregnancy related. I certainly could use to improve my dietary habits...

BUT I DIGRESS! I apologize (again).

Things are chuggin' along in the Telford household. Since last writing, or certainly since last highlighting our youngest Telford inparticular, Thomas has increased the number of teeth in his mouth twofold (many molars!) and is.... (drumroll COMPLETELY necessary)....

... NOW WALKING! It's a MIRACLE! Thom is a touch of a late bloomer on this milestone, clocking in at 17 mos. old. Sam got the hang of it at 15 mos. Thom is cruisin' around like a pro - well, a wobbly pro, but gets more stable daily. I'm still finding the novelty of it all and watching him very fun and fascinating. Sam is mostly good with him, but every now and then gets on a kick where its more fun to play "bumper cars."

(These pics depict their "Nook Hiding" in the playroom. So funny)

Both kids have been coping with the Goopy Cough-n-Cold going around. No flu in this household (i'm literally knocking wood as i type that). Three of the four of us got the H1N1 shot, so those odds are working for us.

Sam continues to fascinate and frustrate the heck outta me, usually at different times, but every now simultaneously. The STUFF that comes out of this 4 yr old's head is the stuff i live for. He is on a BIGTIME "poopy" kick. Any combination of poop, poopy and/or butt is apparently not only really funny, but SOOPITY (his word) AWESOME to say. He's also testing his behavior boundaries as well. Talking back, sticking out his tongue and giving seering looks are all routine. When these textbook stages aren't showing their colors, Sam is completely loving, caring and truly imaginative. He's one smart cookie and he's going to keep us on our toes for sure. At least once a day he says something that causes me to stop and ponder for a moment the complexity or originality of his statement. His MEMORY is another thing that fascinates me. Usually quite out of the blue, he'll remind me of a detail from something that happened one, two, THREE years ago; yes - when he was a little over ONE! Is this unique? Will it STICK? So odd to me...

As brushed upon at the top, my pregnancy has sped along, the fastest of all three, no surprise of course due to Sam and Thom's existence, on top of LIFE in general. Being due in 4 days, it seems almost fruitless to mention the minor complications I've had, primarily referring to having oligohydramnios (or "oligo") which means low amniotic fluid. If a woman has low fluid, concerns arise at various developmental stages (at the beginning) as well as cord compression risks (at the end). I've had low fluid from the beginning and was watched for a while, later told it was at a comfortable level (no further monitoring), and then, when re-checked later, put on hyper-watch due to it being dangerously low. Twice a week I've been checked and SOMEHOW I kept the level above the "that's it, time to delivery this baby NOW" cutoff. As of today and with the past 2 checks, my fluid has been at an average level of any woman at 38 and 39 weeks. Go figure. The other minor drama had to do with switching my doctors at 36 weeks. I was not feeling comfortable with the conflicting opinions of my three midwives paired with the close-mindedness of their partnered perinatologist (read: the dude that would be my surgeon should a c-s be imminent). I've chosen to attempt a VBA2C (Google it) and that has rocked MANY MANY boats in these 9-10 mos. SO ALAS - we're down the homestretch, baby seems cool baking to the very end, and I've become sensitive to every pang, pain and twitch, hoping "this is it." It's going to be IT soon enough, and we'll all meet Baby Telford - a girl, a boy? NO IDEA. FUN FUN FUN!!!!

On that note - - the next post is sure to be chock-full of BABY photos, most likely uploaded by my darling husband, who is downright giddy to be made a Daddy for a third time. See you on the flip side as a Party of Five!

Merry Christmas, Everyone!

Um - Just About the Best Cookie Swap EVAHHH!!!

Ladies - we've outdone ourselves this year!!

Sunday, my gal-pals and i had our annual Christmas Cookie Swap party, which i hosted at our house. Each of us bakes a decent sized batch of our favorite cookies and then we lay them out on the table and go around and gather our own big assortment for the holidays. No two were alike and we had a TON to choose from and everything looked

amazing! The pics don't do them justice. This year, instead of baking 2 BIG batches, I chose to bake about 4-5 regular size batches. I had aspirations of baking a bunch of my favorites from my cookie books, but ended up tweaking and having fun with a few different 'packaged' mixes.

I doctored up a chocolate chip one by adding Heath bar morsels, peanuts and cranberries (YUM!). Ron, Sam and I cut out gingerbreads and i iced them with white icing (each gal got a big gingerbread lady!). Pam made little "hamburgers" which Sam is, of course, enamored with. Just really really awesome. The 'sad' part is that our family (including Shirley AND Tommy) are PLOWING thru the stash. It's just way too easy to reach for a cookie or two (or 4 or 5) when you've got a hankerin'. I'll probably be baking again before Christmas, especially to give to the teachers at Sam's school.

Happy Yummy Holidays, y'all!

Christmas is a-Comin'...

Today we had a GREAT day! Jam packed and just really fun.

Ron and i started off at Wegmans, both of us working (Shirley had the kiddos). I was in sign shop and Ron was playin' Santa. I passed on playing Mrs. Clause this year due to my belly size and the non-accomodation of such conditions in said costume! ;-) A cute gal from Bakery helped Ron and I heard they had a GREAT turnout. Ron makes for an AWESOME Santa. Maybe someday he'll have a real white beard and be "that guy" that everyone knows plays Santa in December.

At noon, we both left and came home to gather Sam and go pick out our Christmas tree! We've got a little place we really dig right outside Addison called Towner Tree Farm. We love 'em cuz they've got a pile of cut trees right up our budget alley: $6.99 baby. And they really aren't THAT BAD. It's not like they are dead or completely missing limbs. They might not be as full or as big. And quite frankly, that is the perfect

tree to me. How can you pack on the ornaments on a DENSE tree? We actually lucked out in finding one that specifically works on our space constrictions - it's "flat"ish. So we're able to push it up against our video stash wall and out of the way of walking space. We also have Tommy to consider. He's not quite walking but certainly inquisitive at pulling up. No dangly ornaments at the bottom (tree is on a table) and SO FAR, as i type this, he's shown little interest in its existence. Phew. I recall Sam being the same way. I like it.

So we spent the afternoon decorating the tree (and 40 min trying to salvage a string of lights i knew worked when i put them away last year. Dont'cha hate that??). Dad came over and he and Shirley watched the Army-Navy football game (around me bending over and getting in their way). The tree just looks so cute. There is just something about a lit Christmas tree at night, lights dimmed - - i get lost in it like staring into a fireplace (which we don't have, or i'd do that too). I think its getting the tree up and decorated that i might most enjoy about Christmastime. Well, that, and watching Sam on Christmas morning. Which this year will be even more exciting than last, 'cuz this year he really gets the whole Santa thing. He's very excited to leave cookies and a note about cold milk in the fridge and often he names random things that he's also going to leave with Santa 'cuz he wants to share. Love my bugger.

Ron fried up some fish and crinkle cut fries (artery cloggin' goodness) and topped it off with a pecan pie for dessert. Sam and Thom enjoyed a purple bubble bath together and by 8:30 both boys were down and the evening had settled down.

Here's to family love and fun for the holidays. I'm so very blessed.

Christmas Fun with Lights! A LOT OF THEM!

Check out this place in Southport. A gentleman named William Cahill owns this house and went nuts with lights and music! It's quite the sight! Ron, Sam, Thom and i took a drive out tonight, with a picnic dinner that Ron packed (!), and sat for about 10 minutes gawking and enjoying! Mr. Cahill even has his own radio station dedicated to the music that is synchronized with the blinking and flashing! We had fun. I think it's definitely worth the drive out there to smile and think "wow!... someone's serious about this stuff!"

Lap Time with Pop-Pop